I was on the 21st floor of the Hilton Hotel in San Francisco, looking out over an expansive view of the city, musing on how my life had changed from one of a scared and uninformed mom of a very sick child, to one of a rare disease advocate giving voice to a national audience.
Last month, I had the opportunity to attend LinkedIn’s Global Sales Kickoff to speak with 2,000 of their employees about how LinkedIn changed my life and the lives of 1 in 10 American patients who are affected by rare diseases.
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